Nigerian Elected Full Member of the World Dementia Council

Nigerian serves on the World Dementia Council

Nigerian Chief Kikelomo Laniyonu Edwards has been elected as a Full Member of the World Dementia Council at a meeting in London where the Council was re-formed to include representation from all over the world.

An excited Kiki (as her friends fondly refer to her) promises to use her 3-year tenure to ensure Nigeria and other African countries continue to work towards reducing the stigma, contributing effort into finding a cure, and developing a dementia strategy to care for people with living with Dementia.

group-photo-fms-and-amsThe creation of a World Dementia Council was one of the main commitments made at the G8 Dementia Summit in December 2013.The new Council brings together the broadest range of influential global leaders with expertise and experience in dementia from all sectors, enabling in a bid to challenge and support Governments, industry, NGOs, public sector, academia, the research community and people with dementia worldwide in a concerted effort to address the world’s biggest disease burden.

Care of people with dementia varies hugely across the world, and many experience stigma and social isolation – 40% say that they have been avoided or treated differently. Dementia is sometimes perceived as a normal sign of ageing, mental illness or even by certain cultures as having supernatural elements. People can also be victims of abuse, for example being beaten for being ‘stubborn’, restrained regularly, both physically and by use of antipsychotic drugs, and cast out from their communities.

WDC Chair, Dr. Yves Joanette, said: “The world has to face up to the staggering personal and economic impact of the biggest disease challenge that we face today. I’m delighted to welcome the new international members of our re-formed Council. Together, we have to mount a truly global assault to change the lives for people with dementia and their caregivers, including the most neglected and isolated. We will do so by amplifying the voices of people with dementia, organisations and communities to reach all corners of the world. I look forward to working closely with my colleagues to challenge and support all Governments in addressing this issue.”

The English Secretary of State for Health, Jeremy Hunt, said: “I thank the World Dementia Council and Envoy for the remarkable progress they have made so far, setting us well on the way to achieve the aims we first established at the G8 Summit as part of the UK Presidency in 2013. While we are seeing progress in drug development and greater understanding of this disease, there can be no cause for complacency and I look to the World Dementia Council to use their expertise and global reach to drive governments, industry and regulators to further action”.

View the World Dementia Council press release here.

World Alzheimer’s Day 2015 in Oyo State, Nigeria

World Alzheimer’s Day, Oyo State, 21st September 2015

029Rossetti Care worked with Oyo State and the Nigerian Union of Pensioners to produce a lively forum raising awareness in support of all elderly people living with Dementia in Nigeria.

Twelve out of 33 honourable members of the Oyo State House of Assembly attended demonstrating the growing support for the awareness building campaign. Over 300 attended the event and representatives from the media attended to further spread the word.

Speaking after the event, Kikelomo Edwards from Rossetti Care said

I was very impressed with the level of support for this initiative particularly as we had limited resources for promoting it. My thanks go to the Oyo State House of Assembly and the Nigerian Union of Pensioners who continue to show their care for elderly people living with dementia. My apologies to those who did not get the information in time and who were unable to attend.  Oyo state is certainly becoming Dementia aware, and Dementia Friendly!

Norman MacNamara, the Founder of the Purple Angel Dementia Awareness movement, said

We and the world are so very proud of the work you are doing to raise awareness of dementia and hope it spread`s over the whole of your wonderful country. Oyo is the First State in Africa to receive PURPLE ANGEL STATUS, and the others will be looking towards you wonderful people to take your example and take this forward. Please know that we here at the Purple Angel are next to your side at every step of the way and always here to help you when needed. May you be guided to carry on this wonderful work in the knowledge that what you are doing will help so very many, and for that we will be eternally grateful.

 

World Alzheimers Day in Oyo State

21 September 2015, World Alzheimer’s Day

WAM_Oyo_A3121st September is World Alzheimer’s Day™, an international campaign to raise awareness and challenge dementia stigma. Each year, more and more countries are participating in World Alzheimer’s events and in many areas, dementia awareness is growing.

September is a time for action, a global movement united by its call for change, but it is also a time to reflect on the impact of dementia, a disease that will affect more and more people as the years pass.

For this year’s event, we are working with Oyo State, the Nigerian Union of Pensioners and Purple Angel Global. This is to continue our awareness building campaign in support of all elderly people living with Dementia in Nigeria. The main themes for the event are Basic Brain, and General Health Check; Fostering Community Involvement for people living with dementia in Nigeria; and Preparation of Oyo State as an Age Friendly Community.

oyo2Programme of event on the occasion of the Fourth World Alzheimer’s Day Held at the Western Hall, Oyo State House of Assembly, Secretariat, Ibadan on Monday 21st of September 2015

10.15AM – Arrival of invited guests

10.25AM – Arrival of special guests

10.30AM – Opening Prayers by Prof Ogunsheye

10.35AM – Introductions

10.55AM – Welcome address by the Head of Rossetti Care, Mrs Kikelomo Laniyonu Edwards

11.15AM – Remarks by Hon Mrs Bolanle Agbajeadilogo

11.25AM – Remarks by the Secretary of The Nigerian Union of Pensioners (NUP) Comrade Abatan

11.35AM – Good will message, and sample of basic brain, and general health check by the representative of the Permanent Secretary, Ministry of Health

11.50AM – Vote of thanks by the Desk Officer Non-Communicable Disease, Mrs Abioye

12NOON – Health checks continue

RefreshmentsDN3_purple_angel

Download a printable copy of the programme here

Nigeria’s first Memory Café

dr lawal

Dr O M Lawal (Ministry of Health)

Memory Café in Ibadan

The memory café was established as part of our awareness building campaign in support of all elderly people living with Dementia in Nigeria. What is a “Memory Café”? A Memory Café provides a place where any member of the public, who feel that they, or a person they know, may have a short term memory problem, can drop in without an appointment, and talk to an experienced volunteer or a professional.  Memory Cafés provide strong levels of stimulation for the service users and an opportunity for carers to exchange experiences and information.

The event was sponsored by Rossetti Care with support from Purple Angel Ambassadors.

Prof Adebayo

Professor Adebayo, Purple Angel Ambassador

The main themes for the event was Health Care, Communication, and Community Involvement for people living with dementia in Nigeria. Of course other topics came up including wider social policy and aging strategies for Nigeria.

Dr O M Lawal representing the Permanent Secretary of the Ministry of Health was given a thorough yet good-humoured grilling by participants when he gave his address. He also had the audience cheering as he delivered his keynote address.

Professor Aduke Adebayo, Purple Angel Ambassador, spoke about her passion for what we do, and imploring the community to help get rid of the stigma that plagues People Living with Dementia and their loved ones in Nigeria.

Professor Ogunsheye

Professor Ogunsheye, Purple Angel Ambassador

The Community Womens’ Leader attending talked about the need to spread awareness amongst all communities, as she herself had always thought that dementia was “spirits” at work, but she is beginning to understand more.

Professor Ogunsheye, Purple Angel Ambassador, challenged Dr Lawal as to why Nigeria still does not have a policy on ageing. Dr Lawal answered that it is early days for the new Federal administration. He explained that Oyo State has policies in place, and has had for years. He cited examples of work being done by the Governor’s wife, Mrs Florence Ajimobi to ensure free health care across the State for the elderly.

Local Doctors also took part as did Community Leaders and as ever we were supported by the enthusiastic Nigeria Youth Service Corps (NYSC).

Professor Baiyewu and Kikelomo Edwards

Professor Baiyewu and Kikelomo Edwards

Other group discussions and informal consultations took place. Kikelomo Laniyonu Edwards and Professor Baiyewu made time to discuss the AD8 Dementia Screening test and other tools she obtained through the Dementia Knowledge Exchange Global.

We also had a great time.

Norman McNamara, Founder of the Purple Angel movement

Norman McNamara, Founder of the Purple Angel movement

A big thank you to everyone who helped and who pledged to continue supporting. We also have to extend a big thank you to Norman McNamara, the founder of the Purple Angel Movement.

Norman McNamara a resident of Torbay, Devon, UK was diagnosed with dementia at only 50 years of age.  Whilst out shopping one day he was rudely spoken to by a shopkeeper and decided to change the way people see dementia and treat others. The rest is history as Purple Angel Ambassadors spread the message of tolerance, acceptance, understanding and compassion for people living with dementia. Together we are making a difference. Worldwide.

March Open Day

Open Event, Wednesday 4th March 2015

Following the success of the open event in January 2015 Rossetti Care have decided to continue with the open day format as part of the awareness building campaign in Capturesupport of elderly people in Nigeria.

The two main themes for the March event are Communication and Community Involvement for people living with dementia in Nigeria.

Text RESERVATION to 07068633627 to reserve your place.

Transport and pick up details to follow.

Dementia, communication, Isolation – Event this Wednesday

CaptureWednesday 4th March Open Event at Rossetti Care

On Wednesday this week we are exploring topics that where touched upon in our January Open Event. Participants wanted more information on what dementia is and how it differs from other conditions experienced by older people. They also asked shared the frustration encountered in communicating with people with dementia and wanted some information and strategies for better communication.

We have added these subjects to our programmed item “Tackling Isolation – Community Involvement” to explore at the forthcoming open event. The programme topics are:

  • What is Dementia?
  • Communication and Dementia
  • Tackling Isolation – Community Involvement

If you are interested in any of the topics under discussion please attend. Text RESERVATION to 07068633627 to reserve your place.

The event will be held at the Rossetti Care HQ in Tose, near Moniya. For those needing transport the pick-up point is:

  • 4 University Crescent, Bodija at 10am

Hestelle – The Carer’s Story

hestelleSandra Harper, a photographer living in England, has kindly given permission for us to reproduce some of her mother’s personal story. Sandra’s mother, Hestelle, cared for her husband Alexander as he developed dementia in his later years. Hestelle’s story and Sandra’s photographic representation of it is inspiring and shows how we can care for our loved ones with family support.

To read Hestelle’s story see: http://www.sandra-harper.com/story/

To view Sandra’s moving slideshow see: http://www.sandra-harper.com/hestelle-the-carers-story/

 

G8 Leaders pledge to find Dementia cure by 2025

g8dementiasummit_1-in-3Leading scientists highlighted the possibility for breakthroughs in the hunt for a dementia drug to provide an effective “cure” for dementia for the G8 summit on 11 December 2013.  The G8 summit committed member nations to sign up to “The ambition to identify a cure or a disease-modifying therapy for dementia by 2025 and to increase collectively and significantly the amount of funding for dementia research to reach that goal”.

As the health ministers of G8 nations met in London for a landmark dementia summit in December 2013, senior British researchers spearheading efforts to find a dementia cure said that research had entered “a new era”.  “I am more encouraged for the future now, than I have ever been,” said Dr Eric Karran, director of research at Alzheimer’s Research UK. “We now understand far better, that the pathology of this disease starts early on, maybe 10 years before we see any symptoms. We now have the tools to image that pathology…that will enable us to investigate drugs that will affect it. I am full of hope that we are going to have a breakthrough in the next five years”.

Clinical trials of a new Alzheimer’s drug had already shown the potential for it to be effective in mild cases, he said, adding that the manufacturer was now working on further trials to investigate its effect on patients with mild symptoms of dementia. If successful, the drug could eventually be prescribed as a preventive before symptoms of dementia begin to show, delaying or halting the onset of the disease, in the same way that statins are currently prescribed to people at high risk of heart disease or stroke.

“As soon as we get efficacy in one drug that will unlock so many other things,” Dr Karran added. “We’ll then have an understanding of the biomarkers that will help us bring through other drugs far more rapidly.”

Highlighting the urgency of scientists’ efforts to combat the disease, the Alzheimer’s Society published new figures revealing that the global burden of dementia has increased by 22 per cent in just three years. 44 million people worldwide now have the disease, a figure which is projected to rise to 76 million by 2030. In western Europe, incidence rates are on track to double by 2050.

Jeremy Hughes, chief executive of the Alzheimer’s Society said that dementia was becoming “the biggest health and social care challenge of this generation.”

 The G8 is our once in a generation chance to conquer this condition and we must see meaningful action after the talking is over.

We live in hope that the same international effort taken to eradicate diseases such as smallpox can now be brought to bear on dementia within our lifetime so that our generation can be the first to not have to be a burden on our children as we get older. Let us also hope that our generation can step forward to give the care and love required for those presently living with dementia to not have to suffer unnecessarily.

Memory Walk on Thursday, 26 September 2013

adi_logoMemory Walk on Thursday, 26 September 2013

The increasing diagnosed cases of dementia in Nigeria especially in old age necessitates the creation of awareness and sensitization through intensive campaign among healthcare professionals, formal and informal caregivers, and the general public.

To commemorate the World Alzheimer’s Month 2013 the Alzheimer’s Disease International Oyo State branch have organized a Walk to sensitize the society on the theme “Dementia: a journey of caring”

Join in with the walk to show your support for improving hte well-being for people living with dementia.

The walk starts from The Secretariat, Ministry of Health, Ibadan from 10am on Thursday 26 September 2013.

It will be followed by a lunch hosted by Rossetti Care in Tose, Moniya, Ibada starting 1pm where you will have the opportunity to discuss issues surrounding dementia and meet professionals working in the field of elderly care.